Let me clarify: by unusual I don't mean it in a derogatory manner. I mean "things that feel completely common to us, yet that those without chronic illness probably don't do/think/experience". And I mean that in the best way, because knowing that there are others out there that do the same as I do, that may have to do the same as I do because of illness, is wonderful. It makes me feel less alone, less of an anomaly. And it's only when I step outside of my spoonie community that I realize "oh, not everyone does/has to do this." And I remember why I love my spoonie community so much - because they get it.
1. We know the "nicknames", abbreviations, and details on illnesses that others (outside of the medical field) have never heard of. This also goes for every spoonie/chronic illness chat hashtag.
2. We have ready answers for our favorite medication trackers/tools/organizers (either electronic or old fashioned pill cases).
3. We actively post photos where we look our worst, because it shows others what our symptoms look like, or how we look during a flareup.
4. We rate how we're feeling for the day in spoons.
5. We choose food according to how it helps us digest our medication. (Mini cheeses are great for mid-day meds dose, you guys!).
6. We choose food according to how badly it affects our illnesses.
7. A nap is not a luxury; it's an essential.
8. We have to create a plan to store up energy for important events, and plan recoup time to replenish.
9. We understand that grocery shopping or running errands for an hour is a big outing. And cleaning the house (when we can) requires reserve storage.
10. Trying to figure out how to take sick days from work is confusing. Every day is a sick day, so... maybe we should do the reverse and take the day when we feel slightly less sick. This way we can actually enjoy a "good" day!
Have more? I'd love to hear them!
1. We know the "nicknames", abbreviations, and details on illnesses that others (outside of the medical field) have never heard of. This also goes for every spoonie/chronic illness chat hashtag.
2. We have ready answers for our favorite medication trackers/tools/organizers (either electronic or old fashioned pill cases).
3. We actively post photos where we look our worst, because it shows others what our symptoms look like, or how we look during a flareup.
4. We rate how we're feeling for the day in spoons.
5. We choose food according to how it helps us digest our medication. (Mini cheeses are great for mid-day meds dose, you guys!).
6. We choose food according to how badly it affects our illnesses.
7. A nap is not a luxury; it's an essential.
8. We have to create a plan to store up energy for important events, and plan recoup time to replenish.
9. We understand that grocery shopping or running errands for an hour is a big outing. And cleaning the house (when we can) requires reserve storage.
10. Trying to figure out how to take sick days from work is confusing. Every day is a sick day, so... maybe we should do the reverse and take the day when we feel slightly less sick. This way we can actually enjoy a "good" day!
Have more? I'd love to hear them!
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